Apr 1 2014

Day 132: The Copy

If it weren’t for a running tally on my calendar, I’d lose track of the days since diagnosis. That’s where I am now – ready to be done marking time. And this morning I got the girls on their buses, walked two miles, drank a green smoothie, did some yoga, checked emails, and logged on to see the NaPoWriMo prompt. That’s National Poetry Writing Month, for those who are unfamiliar. I’ve never done it before, and I usually make fun of National Novel Writing Month every November (because, seriously, one month!? The novel I’m re-revising now has taken me something like three years). But the new, energetic post-chemo dynamo that is my current self wanted to tackle NaPoWriMo, despite the fact that I typically write prose. So I cheated a little and wrote a prose-poem, and cheated even more by using NaPoWriMo’s “get ready” prompt from yesterday. Yesterday, the prompt was to write an ekphrastic poem, or a poem about a work of art. If wall art in home decorating catalogues isn’t really art, then I cheated all around. Nevertheless, here’s the result:

Minding the IV I shift in my seat to see the home decorating catalogue my sister unfolds. She’s driven roughly 300 miles to sit beside me, chemo snaking through the loose plastic loop pinched between my fingers. It’s like talking to a drunk, I’ve warned her, and the mass-produced paintings on canvases in the catalogue drift one into the other like liquid beads. Blues and grays. I can do that, I tell her. I’d been an art student just long enough to learn to copy.

And after my last treatment, the toxins having done their work, sixteen weeks of squeezing the tumor down so small fingertips can no longer find it, I stand in my studio, a bead-board room in the back of the detached garage, stand by the drafting table that takes up half the space and holds three crates of vinyl records on its crossbar underneath, stand and paint the same squares of color from the catalogue. Blues and grays. I add only a touch of sunrise orange, a nod to George, it’s been a long cold lonely winter. Brush to canvas, bristles dragging, long strokes like drawn breath.

Some nights I’d curl around my little girl and teach her how to breathe deep. In, out. Ocean sounds. Can you feel the waves chasing after your toes in the sand? Can you hear them wiping the bad dreams away?

I paint the squares. I paint over the squares. I wipe color on and off again with a rag dipped into the mud-colored water of a plastic tumbler that reads in scratched, black print: Eskimo Joe’s – Stillwater, Oklahoma. I let the canvas dry. I remember why I’d changed my major. My copy is like a slurred version of the original, like me trying to tell a story while the chemo slips along the IV. But it’s the end, too. It’s the first morning I spend post chemo listening to the raking of the brush bristles while I hum “Here Comes the Sun.”

And here’s the copy of a copy itself (see what I did there? I just copied Trent Reznor):

photo 4

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Mar 24 2014

Day 124: Let’s All Go to the Movies

Hello from the other side of chemo! It’s been a little over a week since my very last treatment, and I’ve been celebrating ever since. Of course, it’s just one phase that has ended. I still have a lumpectomy and radiation to look forward to (gah!), but in the meantime I’m happy to be almost all done with this cancer business.

One thing I had to stop doing when I started chemo, since I had to avoid crowds and germs while my immune system was more fragile, was venturing out to movie theaters. Roll up to the top of this blog, will you? You’ll note that it says: Cynthia Hawkins, Girl on Film. Mostly because I typed it in as a joke and now I can’t figure out how to undo it, but also because many people know me as a film connoisseur.

lets all go to the lobby
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Mar 15 2014

Day 113 Monster

This blog began with a monster, a Day One Monster that was cancer, the Firecracker, and me at different turns.  My breast cancer journey has been that way all along, monsters morphing into other monsters, some benevolent, some bad, if I may borrow the language of Frankenstein.  On Day One, my New York friend Carlos started making papercraft monsters, one per day, to photograph and post to cheer me up.  And they did, like the many gifts I’ve been given by everyone from my dear friends and family to supporters I’ve yet to have the pleasure of meeting in person.  A handmade table, a hand-sewn hat, a Star Trek blanket, a hand-knit night cap, poems and photographs, tea, candy, potted herbs, lotions, yoga DVDs, magazines, rodeo tickets, gift cards, dried fruits, a bonsai tree. A bonsai tree!

bonsai karate kid
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Feb 23 2014

Day 96: Incognito

This is me. This is the me you’ll see shopping for dishwashing detergent or walking to the curb when the kindergarten school bus pulls up or standing at a lectern at the university. This is a woman with a bag of tricks, a bag on wheels, no less, a bag that thumps over the concrete seams of campus with purpose. A snack-sized baggie with Motrin tucked inside. A bottle of water. Peanuts. A makeup compact. A bottle of hand-sanitizer. Determination. This woman puts her hand on top of her head in a good Texas gust because she’s afraid it will all blow away. This is me when the girls want to trace hopscotch patterns on the sidewalks, when everyone’s smiling, when the sun breaks over the eaves and the bare tree limbs blur into the blue sky.

DSC_0950

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Feb 18 2014

Day 89: Here Comes the Sun

Three a.m. on Day 89 and I’m sitting on the side of the Firecracker’s bed while she howls over my many reasons why we can’t turn the clock radio on high in the middle of the night.  INXS is playing.  “What You Need.”  I turn it off.  She balls her fists over her eyes, begs to go to my bed, squirms under the new Minnie Mouse sheet set and blanket we’d bought to lure her to her room to sleep in the first place.  The clock radio had been part of that package.  Along with one plush penguin with a flashlight tummy and a zebra-striped beanbag chair she’d pushed into her inflatable igloo in the middle of the room.

igloo
On Day 17, after my first round of adriamycin and cytoxan, I’d stuffed myself full of anti-nausea meds, curled up under my blue blanket, and found the Firecracker beside me.  “I want to sleep in mama’s bed,” she said, and we held fingertips and whisper-sang her usual bedtime songs and somewhere in the middle of “When the Red, Red, Robin Comes Bob, Bob, Bobbin’ Along” I drifted off.  That’s okay, I thought.  Her mom has cancer.  She needs comforting. And hadn’t it been a comfort to me too, to roll over and find her softly snoring away on her dad’s pillow.  She’s pretty much been there ever since because it would seem the corners of her room at night yawn wide with terrible monsters, like the one she met in the Whole Foods fish case earlier on Day 89, the red wide-eyed dead fish which sent her into a blood-curdling scream-run toward the bulk bins.

fish

The problem is, she’s a restless sleeper unless she’s in her own bed.  She’s been staggering off the school bus in the afternoons, wild-haired and half-awake, having slumped to sleep on the ten-minute ride to our front door.  She’s been in a bad mood.  She’s told her best friend she’s not her best friend anymore forever and ever, sparking a meltdown worthy of a call from her teacher.  The problem is, an overtired Firecracker is even more fervently firecracker-like.  So I turn INXS off, though the song keeps playing in my head.  All night.

radio clock

When I was first diagnosed with breast cancer and given the treatment plan back in November, the first thing I did was research.  I learned what to expect on chemo, what to do to curb side-effects, what to eat, and so on, but nothing explained that while I was on chemo the kids would take over like kudzu vine through window gaps.  One reason is ease.  It’s so much easier from under the throw blanket on the sofa to wave a hand and let them play video games for hours on end and eat all the snack packs meant for their lunch boxes and gather every cushion and pillow in the house to make a fort and scatter uncapped markers across the wood floors and accumulate laundry.  It’s so much easier to shrug off a sibling shoving match with something like, “Just ignore each other for awhile, please,” than to actually bring down the hammer of discipline.

laundry

The even bigger thing is the cancer guilt that functions in at least two ways.  For one, I never want to be the reason why they can’t do something – have friends over, go to a movie, stay after school, play outside – whatever it is they often ask to do that requires a little more effort, a little more planning than playing video games and inhaling Oreos at home does.  I don’t want to be the reason, or, more to the point, I don’t want cancer to be the reason.  And when they want something – a shopping spree, skinny pants, a second Instagram account, another dozen stuffed penguins, a spot in mommy’s bed forever and ever – my default reaction is to think, That’s okay.  Their mom has cancer.

valentine candy

Maybe few have written about managing the family on chemo because there aren’t any easy answers, no right or wrong under the circumstances.  Maybe there’s only pushing through to the other side of treatment and reorganizing in the aftermath.  And we’re almost there.  Two more chemo sessions to go.  Four more weeks.

I assure the Firecracker that daddy told the people at Whole Foods to take the red fish to the polar bears at the zoo. “They ate them up, and they’re gone,” I say. “The red fish aren’t coming to our house tonight.” Then I try to convince her again that she doesn’t need her radio to go back to sleep. She’s only quiet under her Minnie sheets when I tell her I’ll sing the song that was my favorite when I was her age:

Previous “Box of Monsters” blog posts:

Day 1

Day 3

Day 5

Day 7

Day 11

Day 14

Day 18

Day 21

Day 28

Day 35

Day 43

Day 51

Day 58

Day 72

Day 74

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Feb 7 2014

Day 74: In the Margins

My dad had a box of fishing tackle he kept in the garage, a great silver box that accordioned into eight levels when you opened the lid.  That’s how I remember it anyway.  The glints on little hooks.  The feathers.  The spools of iridescent fishing line.  Later he’d carve his own out of bass wood and hang them on handmade racks to paint and epoxy them to a high shine, writing names on the tails he’d picked out of an English to Spanish dictionary: Pescado, Nadar, Niño Malo.  But these in the box were store bought, some still in their clear plastic containers that snapped shut.  Lying stretched straight in a tray — a rubber worm twice the length of my finger and the purple color of an old bruise.  I was six or seven, living in Arkansas.  One month before my breast cancer diagnosis, D. R. (Duke) Haney and I were working on a piece about Frankenstein and Duke told me that growing up in Virginia he was able to tune into a D. C. station to watch Detroit-based Sir Graves Ghastly present films like Whale’s Frankenstein in the middle of the night.

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Feb 1 2014

Day 72: Strong-Willed Children

On Day 68 the oncologist sends me back to the beginning, back to the radiologist’s office where I had the mammogram and sonogram that revealed the mass before we knew it was malignant.  This time I try to park close to the front doors because my red blood cell count is half of what it was last time I was here due to eight weeks of chemo, which means I’m walking very slowly in my wig I call “the Hitchcock blonde.”  The “Tennille” wig I wear to work, and somehow I’ve frayed it a little around the bangs.  I think from the time I leaned to pull a sheet of sweet potato fries out of the oven and felt the steam from the gap of the oven door sprawl across my cheeks.  Leave it to me to melt my best wig.  Or it could have frayed because Tennille filed for divorce from the Captain.  So I sweep the Hitchcock blonde bangs back and step into the building’s lobby, which looks like the Genesis cave in Star Trek: Wrath of Khan.  Stone walls and greenery.

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Jan 18 2014

Day 58: Worry Dolls

Day 55 and I returned to the classroom for the first time since starting chemotherapy for breast cancer.  I marched across campus double-time, running a few minutes late, my notebook opened to the building and room number scrawled on the ledger pad, my attaché slipping off my shoulder.  As I squinted at the closed double doors of the lecture hall to see if its number matched what I’d written down and tried to assemble the chemo spiel I’d been rehearsing for three days, I heard someone say, “Let’s do this!”  It was my assistant, Andy, who I wasn’t expecting until the second class meeting.  Andy was among the students on whom I’d dropped the cancer bomb in Fiction class last semester.  He knew, and somehow this made it infinitely easier to throw the door back and say, “Hello!”  I did not say “Hello!  My name is Inigo Montoya!” like I’ve always wanted to do, but … some day.

inigo
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Jan 10 2014

Day 51: Gaps

A belated welcome to 2014, everyone!  ‘Tis the season for fitspiration overload on Pinterest and gym promos and twenty ways to trim your waistline while eating chia seeds and lawn clippings and so on and so on.

It’s everywhere!  I turn on the television, open a magazine, click on my little safari icon and boom – everyone wants me to be Lea Michele in a thong or, rather, a tangle of toothpicks in a rubber band.  Just now, for example, as I was eating broccoli soup off a flaxseed cracker, which really does look exactly like shit on a shingle, one of these belly-buster magic pill commercials came on between news segments and my Janeane Garofalo-voiced inner monologue interrupted with, “You know what’s super for a quick slim down?  Chemo.” Continue reading

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Jan 3 2014

Day 43: Electricity

When I spoke to Jody on the phone she encouraged my confidence in her acupuncture services because she used the word “evil” when I mentioned “cancer” and “chemo.”  Last week, I had … a vision?  I don’t want to say the word “vision” because it makes me think of Dirty Steve in Young Guns warbling out at half-speed, “Did you see the size of that chicken?”  I was dozing off at any rate, and I imagined without trying (okay, call it a vision if you want) that chemo was a lanky woman in a cheap feather boa leaning on an elbow, flicking the nails on one raised hand together, looking back at me with her brows aslant in mock pity.  I’ve worried that my animosity toward the chemo might manifest itself more deeply, might make my body resist the work of the chemo every two weeks.  So I’ve been trying not to see chemo as evil at all, but when Jody made the connection I thought, this is the acupuncturist for me. Continue reading

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